Analyse des similitudes et des différences entre les besoins de soutien des pères et des mères vivant avec un enfant présentant un trouble du spectre de l'autisme

Authors: Bédard, Charlène
Advisor: Milot, ÉliseTétreault, Sylvie
Abstract: Parents living with a child with Autism Spectrum Disorder (ASD) need access to different types of support to fulfill their parenting responsibilities without becoming exhausted. Moreover, this gives them access to a more optimal quality of life and social participation. The objectives of this research project carried out as part of this master’s thesis in social work are: (1) to document the similarities and differences in support needs of fathers and mothers living with a child with ASD and (2) to identify what type of support for the couple seems necessary in order for the father and the mother to have a satisfactory life as a couple. A combination of the typology of the needs of Tétreault et al. (2012) and the Human Development Model-Disability Production Process (MDH-PPH) by Fougeyrollas (2010), constitutes the analytical framework for this research. To collect the data, two focus groups and three one-on-one interviews were conducted with six mothers, four fathers and one stepfather living with a child with ASD aged 5 to 10 years old. The thematic content analysis notes that parents' need for priority support is educational support. For their part, fathers have a need for support of the socialization of their child, their participation in social and recreational activities, and informational support. Mothers have great needs for respite and help with the activities of daily living. The problems having access to services seem to exacerbate social inequalities between families. Future research should explore the perspectives of parents from different family configurations and varied socio-economic backgrounds. A better understanding of the needs of parents is essential to adapt the practices of the caregivers and therapists involved in the families’ daily lives.
Document Type: Mémoire de maîtrise
Issue Date: 2019
Open Access Date: 15 November 2019
Grantor: Université Laval
Collection:Thèses et mémoires

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